AUTHOR=Pedersen Eva S. L. , Collaud Eugenie N. R. , Mozun Rebeca , Dexter Katie , Kruljac Catherine , Silberschmidt Hansruedi , Lucas Jane S. ,  COVID-PCD patient advisory group , Goutaki Myrofora , Kuehni Claudia E. , Bernhard Rindlisbacher , Catherine Kruljac , Fiona Copeland , Hansruedi Silberschmidt , Katie Dexter , Lucy Dixon , Michelle Manion , Sara Bellu , Susanne Grieder 

TITLE=Facemask Usage Among People With Primary Ciliary Dyskinesia During the COVID-19 Pandemic: A Participatory Project

JOURNAL=International Journal of Public Health

VOLUME=66

YEAR=2021

URL=https://www.ssph-journal.org/journals/international-journal-of-public-health/articles/10.3389/ijph.2021.1604277

DOI=10.3389/ijph.2021.1604277

ISSN=1661-8564

ABSTRACT=<p><bold>Objectives:</bold> Primary ciliary dyskinesia (PCD) is a rare genetic disease that causes recurrent respiratory infections. People with PCD may be at high risk of severe COVID-19 and protection against SARS-CoV-2 is therefore important. We studied facemask usage and problems reported in relation with their use among people with PCD.</p><p><bold>Methods:</bold> We used data from COVID-PCD, an international observational cohort study. A questionnaire was e-mailed to participants in October 2020 that asked about facemask usage.</p><p><bold>Results:</bold> In total, 282 participants from 27 countries were included (Median age 32 years; 63% female). In total, 252 (89%) wore facemasks everywhere in public, 13 (5%) wore facemasks in most places, and 17 (6%) did not wear facemasks in public. Half of the participants reported that it was uncomfortable to wear facemasks because of runny nose, cough, or difficulty breathing. Participants less often wore facemasks when there was no national requirement.</p><p><bold>Conclusion:</bold> Most people with PCD wore facemasks despite frequent respiratory problems related to their use. Facemask usage was most frequent in countries with a national requirement emphasizing the importance of nationwide policies mandating facemasks.</p>